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Bridging health care gaps for new survivors – a total population study of young persons with MMC

Background

Since the number of newborns with myelomeningocele (MMC) is decreasing a national network of neuropaediatricians with long experience of MMC has been founded in Sweden. Our first task was to identify the areas of medical concern in adolescents with MMC.

Materials and methods

A total national population study has been performed. The first analysis concerns those born 1986 – 89 and is based on review of medical records.

Results

175 adolescents born 1986–89 were living in Sweden on July 1st 2004, 86 females and 89 males. Their special medical characteristics are presented in Table I. Single symptoms and signs specifically/not specifically related to the MMC were recorded but not presented here.

Table 1

Conclusion

In Sweden approximately 40 adolescents with MMC will yearly reach adulthood the next decennium. A majority of them will have medical problems with need for a multidisciplinary team approach in order to supply the best care in adulthood.

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Correspondence to Sven Mattsson.

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Open Access This article is published under license to BioMed Central Ltd. This is an Open Access article is distributed under the terms of the Creative Commons Attribution License ( https://creativecommons.org/licenses/by/2.0 ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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Mattsson, S., Astrom, E., Dahl, M. et al. Bridging health care gaps for new survivors – a total population study of young persons with MMC. Fluids Barriers CNS 2, S10 (2005). https://doi.org/10.1186/1743-8454-2-S1-S10

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Keywords

  • Medical Record
  • Total Population
  • Medical Problem
  • Multidisciplinary Team
  • Young Person