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Long-term management of children with spina bifida: commentary on the nurses break-out session, June 26th

The breakout session was aimed to be an informal networking opportunity for nursing staff and other health care professionals, aiming to improve the care of children with spina bifida. The session went very well and the evaluations were very positive. The first session was from Marie McGonnell, our local ASBAH advisor. She gave an outline of her invaluable role as a support for the families especially prenatally.

Following coffee, Mary White gave a talk on catheterisation in schools. This was very interesting and provoked a lot of discussion on how each centre managed their children with neuropathic bladders with regard to catheterisation.

Marie McGrogan (the Coloplast representative for Peristeen), Laura Connolly and Emma Kelly gave a presentation and case discussion on Peristeen rectal irrigation system. This preceded a discussion on the management of neuropathic bowels. To conclude the session, one of the senior Physiotherapists in RBHSC, Finola Beattie gave a presentation on how children with spina bifida are managed their physiotherapy and mobility. Finola had video footage of children in the gym which provided the nursing staff a great insight into the invaluable role of the physiotherapy. All in all, the session was very well received and provided a forum for discussion and learning.

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Correspondence to Emma Kelly.

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Open Access This article is published under license to BioMed Central Ltd. This is an Open Access article is distributed under the terms of the Creative Commons Attribution 2.0 International License (, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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Kelly, E. Long-term management of children with spina bifida: commentary on the nurses break-out session, June 26th. Fluids Barriers CNS 6 (Suppl 2), S49 (2009).

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